Category Archives: Peer Voice

#NothingAboutUsWithoutUs Ever.


Autism and expectations

I’m in the middle of reading Luke Beardon’s new book, “Autism and Asperger Syndrome in Adults” and I’ve paused to splurge this. I am frantically typing because I want to get back to it, but didn’t want to lose my train of thought.

I’m on the chapter about autistic resistance to change. Luke is sympathetically describing why, in a life of instability, we may need the small things to always be the same. It makes sense. It all makes sense. He does that. He’s one of those sense-makers. We need more of them.

It got me thinking about my routines, I have a lot of them. Every day I wake up about an hour before my alarm goes off, I have a coffee (always the same way), and one of those effervescent vitamin-energy-godawful-tasting things in a pint of water. That’s my breakfast.

You may say breakfast is the most important…

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Are Asperger’s / autistic people bossy?

the silent wave

As most bloggers are aware, Google encrypts keyword searches, and has been doing so since 2013. ”User protection” makes for a flimsy claim, but it’s Google’s story and they’re sticking to it. Which might have been halfway believable if it didn’t also extend to users who weren’t even logged in. But I digress.

Nevertheless, I see keyword search strings from other search engines, and the words “Asperger’s” and “bossy” have shown up in relation to each other. Apparently, curious minds want to know.

So, I’ll deliver, at least one (that’s me) person’s take (because although practically every well-recognized informative source talks about Asperger’s/autism in terms of “we/us”, there’s an unwritten rule somewhere against my doing that, even if I’ve issued the applicable disclaimers that hardly anyone else feels the need to, but ah hell, I digress again lol.

(Maybe the heat, humidity, and sheer absence of breeze have really…

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So What Is Executive Dysfunction?

So Much Stranger, So Much Darker, So Much Madder, So Much Better

Executive dysfunction. It’s one of the trademarks of developmental disabilities such as autism and ADHD along with many other possible sources such as depression or schizophrenia. For those of us who went undiagnosed for a long time or who never learned about dysfunction, we often view ourselves as lazy, worthless, or many other terrible things. Things that others seem to find so easy can seem incredibly difficult or even impossible to those of us with executive dysfunction. So what exactly is executive dysfunction and what can I do about it? Today we’re going to talk about what it is and in a later post we’ll delve into strategies for dealing with it.

Executive dysfunction is when a person struggles with aspects of executive functioning. (I’m sure some of you are rolling your eyes at the statement of the obvious). However, what exactly is executive function? That can be tricky to…

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Asperger’s / autism vs ADHD (Attention Deficit) ~ My perspective 

the silent wave

(Beginning note 1: this is the post that I began Monday night–yes, three full nights ago–that I had no reason not to think to myself, yeah; I’ll bang the rest of this out tomorrow in between meetings, no problem. Little did I know that it wouldn’t be nearly that simple; my brain would be kidnapped by Nicotine Withdrawal Elves overnight, which, “they” don’t tell you, essentially makes the brain feel like it perpetually just woke up. Therefore, this post is the product of sheer perseverance, if nothing else. It’s probably not my best writing. But please be gentle with me; it’s a miracle I got it done. Seriously, I can’t explain how hard I’ve worked on this over the past three days just to write something coherent enough to hit “publish”; you probably wouldn’t believe me, and I probably wouldn’t blame you.)

(Beginning note 2: this post is about my…

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How not to do an autism conference


Reflections on the NAS Autism and Mental Health conference 2017

It’s now two days since I attended the National Autistic Society’s ‘Autism and Mental Health’ conference at the Hilton in Reading. The event was attended by around 400 people and starred Tony Attwood and Wenn Lawson alongside other speakers. I was really looking forward to learning more about autistic mental health, but came away disappointed on many levels. Here’s why:

The venue was easy to get to and I arrived early as the pre-conference documentation indicated that parking was limited and that the alternative was parking further away and getting a bus. I struggle to use buses, they make me very anxious and to get through the day I needed to do as much as possible to reduce the avoidable anxieties.

  • Please consider using venues with sufficient parking.

The conference was held on the ground floor of the hotel, but…

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Badass Firefly Sheds Some Light On NAMI Board Candidate Jaffe

Badass Firefly Writes | I have followed DJ on Facebook for many years. I find his website amazing in it’s breadth and depth. A lot of his positions are backed by data, science, and very careful policy analysis.

Continue reading Badass Firefly Sheds Some Light On NAMI Board Candidate Jaffe

#PeersAtTheTable | Anon Letter by Previously Homeless Blue Sky Member

Letter | #PeerVoice

blueskymainI was referred to Blue Sky Wellness Center as a homeless person with major depression anxiety.

This center, where peer support is encouraged, is a resource center not all communities have. Within it I found a safe haven where I could work on my whole health and find housing. Their acceptance helped me regain my wellness and learn to be able to advocate for myself and my community. Continue reading #PeersAtTheTable | Anon Letter by Previously Homeless Blue Sky Member